[retiredguy123]

Originally Posted by l2ridehd

Was with active surveillance for 5 years and than was told I needed to take action. My doctor wanted to do robotic surgery. I did a ton of research, read about 20 books and 100's of medical white papers that a family member got access for me, and than did the John's Hopkins one day evaluation and recommendation process. They have a team approach with a surgeon, a radiation oncologist, a medical oncologist, and a prostate cancer specialist spend a day reviewing all the information, doing tests and than they meet as a team with you to discuss options. They take 6 folks every other Friday to do this. I had a PSA of 8.4 and a gleason 8 in one core with a 7 in a second core.

After all this information I decided against surgery and went with Proton radiation at UF Proton Therapy Institute in Jacksonville. That is the closest available cyclotron which is required for proton radiation. Photon radiation is available locally here in The Villages. There is a huge difference between Proton and Photon radiation and you really need to understand that difference before making a decision. The collateral damage done by Proton radiation is significantly less than with Photon radiation.

Today I am cancer free, PSA <0.1 which means they can't measure it, and zero side effects. There are usually really bad side effects with other treatments which include things like ED, incontinence, and bowel and bladder issues. If you need treatment, I would be happy to discuss my treatments and why I chose to go the route I did with you. Or anyone else who is facing this decision. Just send me a PM with your contact information.

I think they now have the proton treatment in Orlando.