Quote:
Originally Posted by DonnaNi4os
I am a lupus patient and have been on hydroxychloroquine for 18+ years. I have heard that the propensity to acquire COVID-19 is very low for patients who have been on it for a length of time. Other reports say I would still be at risk so I am taking the recommended precautions.
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First, best wishes in managing your lupus. HCQ is an excellent well studied medication for lupus. As you certainly are aware it does not cure lupus rather it lowers disease severity. SLE makes you higher risk. Please follow the recommendations you have heard about hand washing, social distancing etc. Be safe. Do not assume your HCQ will protect you.
There have been some attempts to determine whether people on HCQ for lupus or other reasons have a decreased risk of illness from COVID. There is an
online registry of patients with rheumatological diseases and COVID entering their own data, thus not a reliable resource. As of April 10 there are 234 patients. 29% of the COVID patients were on HCQ when they became ill.
April 4 2020 “They should look at the lupus thing.
I don’t know what it says, but there’s a
rumor out there that because it takes care of lupus very effectively as I understand it, and it’s a, you know, a drug that’s used for lupus,” ... said during the briefing. “So there’s a study out there that says people that have lupus haven’t been catching this virus.
Maybe it’s true, maybe it’s not.”
This is an example of someone telling you he does not know what "it says" then spreads a "rumor" Then says there is "a study" then says maybe or maybe not. This not useful information and I understand why you have had a hard time figuring out what the person understands or is trying to say. In summary this is a rumor of the non-results of a non-existent study being stated as a non-fact by an imprecise barker. Argle bargle
There is no study out there I can find. Fact checkers have asked for evidence of the study from the above person, and not been provided with evidence.