Your illness sounds so difficult and I am very sorry that you have to deal with it. I would try the recreation news. It is such a great benefit to have a support group and even if you meet one other person with Dystonia, it would be a good thing for both of you.
If you are being seen by an M.D. here for your illness, perhaps he or she would know of another patient, or you might ask at Shands Hospital at Gainesville if they have a support group. Usually rare disorders have support groups sponsored by large teaching hospitals and the one at the University of Gainesville would be the closest I believe.
Good luck and kind thoughts.
Last edited by graciegirl; 01-17-2009 at 08:34 PM.
|