Your primary care team is paramount and your case will be unique.
That said, I discovered through support groups some simple ways to deal with the daily grind. One example, I used a velcro "belt" to keep my feeding tube in place. When I showed that to my oncologist, she said she'd not ever seen one before.
It does help to hear the experiences of others and get info from a personal perspective in addition to the professional view Best wishes and hang tough.
Quote:
Originally Posted by Dgodin
The primary care team, especially the lead oncologist, must be the primary means of information. when I was faced with esophageal cancer a year ago I determined to stay away from Google and other on line information as I felt the potential danger of receiving false information from unvetted sources was too high. This meant I placed a lot of trust in my Oncologist, but I still feel it was the best choice.
However, I did join an esophageal cancer support group and feel the information I received from them was very valuable and helpful. The doctors can tell you a lot but have rarely personally experienced the disease and cant tell you how it feels to go through it and how you may experience symptoms and side effects. So it is valuable to get opinions outside of the medical profession.
|