Talk of The Villages Florida - View Single Post - What would you do if the doctor said, there is nothing we can do for your grandchild?
Thread: What would you do if the doctor said, there is nothing we can do for your grandchild?
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Old 03-09-2022, 12:14 PM
DAVES DAVES is offline
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Originally Posted by baileysdad View Post
That's what the parents of about 200 kids around the world heard when their kids were diagnosed with H-ABC, a very rare, terminal brain disorder. There is no treatment, no cure. They are diagnosed about 2 to 4 years old and live to their early teens. The Foundation to Fight H-ABC was formed to raise funds for research. Go to H-ABC.org to learn more.

To raise research dollars in The Villages we are hosting:
The Barry Manilow tribute show
Savannah Center
March 19, 2022
Shows at 5PM and 8PM
All tickets are $40
Get tickets at thevillagesentertainment.com

Many of you have met Elouise at our other H-ABC fundraising events - she will be there with her beautiful smile to thank you for coming.
I don't know what I would do. Perhaps, the right thing is to allow her to forget pending death and enjoy current LIFE. Is taking her to fundraisers, FAIR, RIGHT? I do not have answers only questions that few DARE to ask.