Quote:
Originally Posted by LuvNH
I have to assume you are referring to me as a "hater" which is not so at all. My husband had a rare autoimmune disease which could not be diagnosed for 16 days, by which time lack of oxygen to the brain and extremities was irreversible.
I still beat myself up for not knowing what to do.
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Quote:
Originally Posted by BigDawgInLakeDenham
Please know it's not your fault. You're doing the best you can in this life. Having worked at one of the most recognized names in medicine, Please accept my words as true.....even at the hospital that elites fly to, from all over the globe because of the name, it is typical to take a while to diagnose a rare disorder. Thank you for taking care of your husband like no one else could.
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Please allow me to second what Big posted, in no way was this tragedy your fault and there is no reason you should have known "what to do" if the health care professionals didn't know. I'm sorry for your loss. And he/she is also correct---rare diseases aren't always immediately evident, and in the case of autoimmune disorders even the antibody tests may take over a week to come back from a reference lab. Also, any autoimmune process that can kill someone in 16 days in most cases wouldn't be all that responsive to treatment within that time frame, and even if it was, his life might have been severely compromised. I realize these words will ring hollow, but he may very well be in a better place than he would have been had he survived.