Quote:
Originally Posted by PugMom
yes, Joe, it can be done, but is remarkably expensive. i kept my husband @ home for the majority of his illness- i didnt trust anyone to do the job so i did it myself. you will need to go beyond caregiving as the needs rise, & you will need to hire a specially trained dementia nurse. the one i chose was 28$ an hour, and when things got REALLY tough, i had 1 during the day & another one overnite. this is an ugly disease, i feel for you. if you choose to go the route of facilities, you MUST go in unannounced to see how thing are when they know family isn't there. @ the very end, Mark went to a short visit @ HarborChase over on Powell. i took him out in about 10 days, lol. when i went in, he was uncared for, no shower or clean clothes, food all over the floor & a soiled bed. (i got him showered & dressed myself.) when i spoke to the gal in charge, she told me he needed XTRA care & that i'd need to hire a caregiver (???) to spend the day with him. it was insane! i led him to the car & brought him back home. they may have changed names, but is still the same cast of characters. if you need names & numbers, pm- me here. God Bless, Joe & many huggz sent ur way, oxo
|
So was this dementia nurse service available locally here in TV or was that elsewhere in the country? Was it thru a service or did you hire the person privately? We're not entirely opposed to hiring extra help for him while in memory care. I mean...it seems ridiculous, right? But it might be worth it.
Just today he called us because he was "stuck between his wheelchair and the bed" and "didn't feel like sitting there for the next 6 hours waiting for somebody to check on him" (he actually said that!) It turned out to be more "couldn't get his legs onto the bed", kinda 1/2 in and 1/2 out of the bed...but still. We called the front desk and they had somebody in there within a couple of minutes (we're loving the camera). If he hadn't had his phone in his pocket he'd just have been waiting for who knows how long. I'm not exactly upset at the care, I think they are doing what they do and everybody is friendly at least. It's just that we think we need more. And not just a little bit more!
Joe