Thread: Lyme Disease
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Old 05-26-2012, 03:33 PM
beartrack beartrack is offline
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Originally Posted by KILLICKB View Post
Yes, it is here in Florida, I deduced that I received my bite in Sumter County. Certainly it has been determined that cattle may carry the tick and it may even have the capability of surviving in Pine straw mulch. Unfortunately the CDC here showed no interest whatsoever in assisting me with treatments or education of Lyme. My symptoms/health are deteriorating purely because of the disease and even though most states have Lyme support groups few have found good Lyme knowledgeable physicians. What is worse is knowing that none of the very expensive treatments to reduce the symptoms are covered by Medicare or Insurance.
My current doctor says he worked for 10 years, while working out West, trying to find a protocol for a cure finally resorting to just treating the symptoms, which are devastating to a normal lifestyle. Would be so nice to be able to talk personally, instead of via e-mail, to like suffering persons.
Sorry about your situation with Lyme disease. I was bitten at Shelter Island off Long Island N.Y. sometime ago, 1990 or so. Fortunately, my wife is a nurse and was managing a Rheumatology practice in Port Jefferson long Island. The head of that practice is a Doctor named Alan Kale. The last that I heard of him he was head of rheumatology at Stoney Brook University hospital. He examined me and diagnosed the Lyme disease, he put me on an IV regimen of Rocephen. It was a long time ago but, I seem to remember having two courses of these IV treatments. They seemed to have worked for me as I have not experienced any major reoccurance of the disease in a very long time. However, they know so little about this disease that it may be the possible cause of other ailments such as arthritis, heart problems or even some cancers.
My best advice to you would be to contact a rheumatoligist in Long Island or in Conn. They have been dealing with this disease for many years and in my opinion, they would be the most Qualified Dr's to deal with your situation. I hope this helps. Good luck.