Yes, we have been trying to get the infusion protocol started for 6 weeks now. We found an LLMD in Tampa (who has given us the protocol to follow and we have spent $1200 on the drugs etc for this) but need a primary doctor here in The Villages just in case of emergencies. We thought we did but he is refusing to believe my wife has Lyme and will therefore not assist us. We have talked to many doctors/nurses about help and on Friday a Home Health company told us that they had approval to go. So we got the PICC line inserted to begin the twice a day Rocephin infussions. We also procurred other supplies drugs etc @$700.
We get home this morning from PICC insertion and have message that the treatment will not be started as no authorisation has been recieved!!! The last few hours on the phone have gotten nowhere so now I suppose we go to emergency and have the PICC line removed -- goodness knows if insurance covers any of this.
So we are now having to backtrack and find a new primary doctor, go through the paperwork to get established and see if they will work with us on this. We assume all of our money and effort is down the drain at this point. In the meantime I am trying to keep my wife from doing something stupid!
You want our opinion of the medical proffesion !!!!!!!
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