Here are a few posts from a lyme forum
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Yes, my first "diagnosis" was fibro, and I went 25 years looking for what it was.
Then I found out I actually got Lyme disease, from a known tick bite. I can date every symptom, which makes it very clear for me - 18 months later, I had full-blown fibro.
When I found out it was Lyme, I tried to contact as many folks as I could from my fibro days, and by then, in the mid 2000s, they had found out it was Lyme, and some had co-infections.
Also, if you watch the Lyme film, "Under Our Skin," which you can do for free at
Watch TV. Watch Movies. | Online | Free | Hulu, you will see many Lyme patients saying they were first diagnosed with fibro.
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#3
Yes, I had fibromyalgia and when I was done with Lyme treatment it was gone, too. Lyme definitely caused the fibro.
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#4
Posts: 12229 | From Ohio
Initially, I was diagnosed with FM and CFIDS. The fibro pain has improved greatly since being on the correct treatment
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From EAPennsylvania
Fibro usually IS Lyme.
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#6
Posts: 1236 | From NJ |
I think lyme and fibro is the same thing.
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An LLND came and spoke at a support group meeting. She stated that 95% of all people diagnosed with Fibromyalgia test positive for Lyme (IGeneX criteria). And where there is a positive Lyme test, there is likely also coinfection issues.