[TrudyM]

Originally Posted by gamby

Trudy



My post was misunderstood ,

Fibromyalgia, IS a real disease, it was not recognized by doctors at that time; It's still not known what causes it. There are several doctors/researchers that found Spirochetes (Lyme complex disease) in many of these patients. When treatment for this was tried some got well. It's still controversial .

The illness was not invented , The name "fibromyalgia" was.
It's a syndrome, meaning a group of symptoms so it is not a disease but a condition.
I never said it was funny , I don't know where you got that from.




I have chronic lyme disease and co/infections since 2003; Many ER trips, Black outs, in a coma for months followed be a year in the Hospital, 2 years of rehab just to learn how to walk again and Lost my sight for weeks. I finally got out of my wheelchair and can function somewhat again with a walker. I do still have many of the symptoms but not as bad since years of treatment.

I am sorry for your pain. I am glad you have gotten some improvement.

I just get frustrated when just because the doctors don't know what causes something people think it is made up. I thought that is what you were saying. It is called the practice of medicine I think because they still don't know what causes a lot of what people suffer from. When my mother had fibromyalgia at first her insurance wouldn't pay for her treatments as they said it was a mental illness. As you can tell it still makes me angry and now I have the same symptoms she had just not as severe. Thanks for the suggestion about getting tested for lyme. I don't know if I was tested for lyme disease I will check but they ran me through a full blood panel so I would assume so.