MONEY! There is a lot of money to be made keeping people alive when, maybe, they should be allowed to pass with dignity. Until you get the MONEY out things will never, ever, change.
........... and, yes I think we keep babies alive who in the past would have been allowed to pass away, but I have never been in the position of having a child with a condition such as this, so I really should not make a comment.
I have had friends who have refused all meds other than pain killers, and who have passed with their spouse at home in peace.
This is an extremely difficult subject to raise on a chat line like this, people want to enjoy their life, not face the inevitable. We have already documented our wishes for our children to follow and that was not easy for them to accept. No one wants to accept that our time on this earth is limited.
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A people free to choose will always choose peace. 
Law of Logical Argument: Anything is possible if you don't know what you are talking about!
Since light travels faster than sound, some people appear bright until you hear them speak
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