[mommieswamie]

Without reading back over everything, I am not sure if I ever mentioned how very hard it was to not have a diagnosis. That is correct, we had no diagnosis, or I should say we had many diagnoses, none of which panned out. We knew it was a neurological disease but what was it. Test after test, doctor after doctor, maybe this, maybe that, but nothing fit.

There are no support groups for "no diagnosis". Where do you go for help.

On arriving in SC, the medical team at the facility caring for my husband referred him to yet another neurologist. This doctor told us of a brand new test that might help. The test was "markedly abnormal" so this coupled with other medical criteria lead to the diagnosis of Corticobasal Degeneration, one of the Atypical Parkinsonian Syndromes. At least now we know what we are facing.