Quote:
Originally Posted by graciegirl
Veteran member
Join Date: Aug 2011
Posts: 612
 Another Update
Hello Gracie
Well last week on Thursday I had my latest chemo treatment and it was basically uneventful. Things were good until about Friday afternoon when the nausea started to kick in. From there until I had the home chemo pump disconnected on Saturday I felt like I was run over by a train. Nothing major but just feeling like doing nothing and no motivation. I did a lot of resting on Saturday and then again on Sunday. Things fell in line and when I got up today I really felt good. I did have an oncology appointment today so that went on with no hitch. The doctor still remarked if it were not for the "Do" he would not even believe I was being treated. He is really pleased with my progress and I asked him about long term. He stated that I will have thins for life and it all depends on the severity. They are getting the CA19-9 numbers down from 1813 back in September to 78 last month. He already wants that blood test to be preformed on my next blood draw / chemo on March 20. Normal range for someone that does not have this type of cancer is 0 - 37. The doctor said just because I may get into that range it is not an all clear sign. It dose mean things are a lot better but still needs to be watched.
I asked him about going to Florida and we got into a discussion about that. He asked when did I go and I told him for 4 months starting December 1. He then just rolled his eyes. I do believe that if the blood numbers improve and a CAT scan comes out clean then he may give me 3 or 4 weeks. I think the decision about a CAT scan will be decided after the next blood work.
How screwed up is our health care system just get sick and you are in for a rude awakening. I have to give my self a shot in the thigh every night to thin the blood. Per the doctor this is better than the pills for someone with my conditions. Well last year I never had major prescription charges and the script was costing $10.00 co - pay. In January I go to get a script filled and the cost to me is $1,100. out of pocket. Today I get a refill and it is $975.00 for a 30 day supply. Who knows what it will be next time.
I received a phone call this evening and the person mentioned they were sitting on the lanai in shorts and a t-shirt. Temps were nice today and sunny. Here in Ohio we won't be seeing that for 2 1/2 to 3 months.
Take care and say hello to the entire family. Also you may want to pass this on to Cyndy and others of the posy.
John |
this is exactly why I want to have a heart attack and be dead before I hit the ground I don't want to waste away like an old car and live a miserable quality-of-life my prayers to this Oldboy because he's a lot tougher than I would be but I could never do this. sometimes I think we forget what it's like to really face crisis and how we would handle it my old friend Dick trickle who was a NASCAR driver was faced with some difficulties and was not going to go through a this miserable quality-of-life he handled it is his way and went out on his own terms my prayers to my friend Dick trickle and John
sometimes I really wonder why my God challenges people up until the very last breath!