University of South Florida in Tampa, (an hour or so away) is a wonderful resource for Huntington's Disease. They have a big support group for people who have it and their families. They also do testing for people with family members who have Huntington's who want to know if they will themselves develop it. It is a simple blood test. It is handled very discreetly and it is not terribly expensive if you go thru their labs. They also have research programs for pts. who are interested in learning about this inherited disease in their families as a confirmed person with it ,or potential family member who could develop it .It almost always develops in the young adult years 20-40s. It is really worth checking out ... The site is on line under USF Health .Look under research.
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