Fibromyalgia: The Diet Connection

[jimbo2012]

Rheumatology experts like Alex Shikhman, MD, believe the diversity of dietary approaches may have less to do with the impact on fibromyalgia, and more to do with treating a secondary, possibly undiagnosed illness. "When patients are helped by a specific dietary measure," says Shikhman, who is director and founder of the Institute for Specialized Medicine in San Diego, "it is often because of the presence of a secondary condition that does have a recognized response to diet. And when you take care of that, you do get some relief from all the symptoms. You feel better overall."

There are a number of co-existing health conditions that have a tendency to occur in people with fibromyalgia. Many of these have overlapping symptoms. These include gluten intolerance, gout (a form of arthritis), and restless legs syndrome. Some doctors believe food sensitivity itself could sometimes be responsible for some of the pain and fatigue of fibromyalgia.

Moreover, Holtorf points out that because each of these secondary conditions responds to a different dietary approach, it's not hard to understand why "different dietary recommendations are reported to work."

Shikhman believes that sometimes fibromyalgia may even be the wrong diagnosis. That's another reason, he says, we can sometimes see such dramatic and immediate response to so many different dietary measures.

"Sometimes, if you carefully note which foods a patient responds to," Shikhman says, "you can actually get a significant clue as to the true nature of their underlying health problems. And it might not always be fibromyalgia."
Fibromyalgia: Seven foods to avoid

While there may not be a single set of dietary guidelines that are right for all fibromyalgia patients, there are certain foods, or food groups, that appear to make a difference for a significant number of people. But remember,
avoiding these foods is not a guarantee that your symptoms will change. Also, avoiding one group may offer benefit while another may make no difference at all. Nevertheless, the experts WebMD talked to agree that eliminating at least some of these foods is worth a try.

1. Aspartame (NutraSweet). All the experts WebMD talked to agree that for a large majority of people with fibromyalgia, foods sweetened with aspartame could exacerbate fibromyalgia symptoms.

"There is a pain receptor in the nervous system known as NMDA," says McNett. "When pain turns from acute to chronic, it involves opening the NMDA pain receptor. Aspartame, which is classified as an excitotoxin, helps to stimulate this event." He also says people with fibromyalgia appear to already have overly active NMDA pain receptors, making them more susceptible to the stimulation.
2. Food additives including MSG (monosodium glutamate) and nitrates. MSG is an additive or flavor enhancer that's found in many processed and frozen foods and in some Asian cuisines. Experts say it can intensify pain symptoms in many individuals. Like aspartame, MSG is classified as an excitotoxin and has the same potential for affecting NMDA receptors.

The same is true, says McNett, for foods containing preservatives such as nitrates, commonly found in lunchmeats like ham or bologna or in bacon.

"A lot of people who don't have fibromyalgia can't tolerate nitrates or MSG very well. But one of the hallmarks of this condition is that it amplifies unpleasant reactions," McNett says. "So a stimulus that some people would find mildly unpleasant becomes very unpleasant in those who have fibromyalgia." Cutting these ingredients out of the diet, he adds, usually helps.
3. Sugar, fructose, and simple carbohydrates. There is no clear evidence that cutting out simple carbohydrates -- like sugar, cake, or white bread -- will have an impact on fibromyalgia. What it can do, though, is reduce symptoms of chronic yeast infection -- a fungus that thrives on sugars and may be a secondary condition contributing to the pain of fibromyalgia. This theory, however, is still being debated by experts.

"Cutting out sugary foods, particularly high fructose corn syrup, can make a difference in these patients," says Holtorf. "And that's independent of any weight loss that might occur when they stop eating these foods."

Shikhman adds that cutting out carbonated beverages sweetened with fructose may yield even more noticeable results. That's because the carbonation, he says, causes a metabolic reaction. This reaction results in much more sugar pouring into the blood much more quickly.

"It's this quick rise in blood sugar," Shikhman says, "followed by the subsequent fall that exacerbates the fatigue element of fibromyalgia. That, in turn, creates more cravings for sugar, followed by still more fatigue -- allowing a vicious cycle to develop." Cutting out the sugar, he says, particularly soda, can result in better, more even control of blood sugar. Better control will help reduce fatigue and at least some of the related pain.

4. Caffeine -- including coffee, tea, colas, and chocolate. Because it is considered a stimulant, many fibromyalgia patients turn to caffeine-rich beverages as a source of energy. But McNett says the boost you get is false -- and can quickly exacerbate fatigue.

"The problem with caffeine is that the 'up' is relatively brief and transient," he says. "And it's followed by substantially longer and deeper sedative effect."

Because people with fibromyalgia are already tired, McNett cautions, those sedative effects can be much more powerful. "They are starting off from a point of fatigue, so the sedative qualities are amplified -- leading to a much deeper and long lasting sense of fatigue."

The good news is that cutting out caffeine can make a difference within less than a week. "Most patients begin to see a difference in their fatigue level almost right away," he says.

5. Yeast and gluten. Although these are two separate food substances, they frequently appear together -- particularly in baked goods like cake, donuts, and bread. For this reason, cutting out one, usually means you are cutting out both. That can actually yield two separate benefits for people with fibromyalgia.

In the case of yeast, some doctors say it fosters the overgrowth of the yeast fungus in the body. This overgrowth may cause or exacerbate much of the joint and muscle pain experienced by people with fibromyalgia. Research, though, has yet to confirm this link.

Gluten can exacerbate a condition known as gluten intolerance. Gluten intolerance, Shikhman says, frequently results in a variety of stomach ailments and other digestive problems. It also is associated with fatigue in patients with fibromyalgia.

"I have seen people with and without fibromyalgia experience enormous positive changes in their health by simply cutting out gluten products," Shikhman says.

6. Dairy. Be they low fat or high fat, some experts say, dairy products -- particularly, milk -- have been known to drive the symptoms of fibromyalgia. Avoiding these products may help some people turn their health around.

On the other hand, if you feel as if milk is doing your body some good, keep chugging a glass or two of skim milk a day. It's got calcium to build bones and protein to build muscle, and it's fat free.

7. Nightshade Plants: Tomatoes, chili and bell peppers, potatoes, and eggplant. There are over 2,000 species of plants that that can be listed under the category of "nightshade." Those which are edible comprise a group that some say can trigger flares of various types of arthritis, including fibromyalgia.

"I have seen patients who do much better when they cut these foods out of their diet," says Holtorf. We're not sure why, but it seems to work in a significant percentage of fibromyalgia patients." At the same time, these vegetables are among the most nutritious. So if they don't trigger your fibro pain, don't ban them from your fridge.

Avoiding certain foods may help individual patients better cope with their disease. Nutritionist Samantha Heller, MS, RD, says, however, that most can also benefit from an overall heart-healthy approach to good eating.

"When you are eating a heart-healthy diet - one low in saturated fat, lean meats, and poultry and high in the fresh fruits and vegetables that don't cause you problems, your body is going to work in a more healthful way, " Heller says.

And while, she says, this won't necessarily reduce your fibromyalgia symptoms, it can help to reduce the risk of other ailments that can only compound your health issues.

"When your body is healthier overall," says Heller, "you may be better able to cope with any disease, and better able to respond to even small changes you make."

One small study published in the journal Complementary and Alternative Medicine in 2001 found that patients who ate a vegetarian diet consisting of mostly raw whole foods did see a reduction in their fibromyalgia symptoms.

Holtorf also believes that sticking to a heart-healthy diet may yield some specific helpful effects. "Patients with fibromyalgia have documented mitochondria dysfunction," he says. "This is the area of the cell where energy is made. Consequently, it's necessary to have high levels of nutrients to get the mitochondria to work and for energy to be produced." So, Holtorf adds, the higher your level of dietary nutrients, at least theoretically, the better off you might be.

What can also help, he says, is a high potency vitamin supplement as well as supplements containing omega 3 fatty acids. Omega 3 fatty acids -- which are also found in foods such as fish oil, flax seed, walnuts, some fortified cereals, and eggs -- are the "good fats" that have been shown to have an impact on inflammation.

"For some fibromyalgia patients," Holtorf says, "they work extremely well." Then he adds, "It is definitely worth a try."

[jimbo2012]

Now the vegan take by Dr. McDougall.

Too long to post but read here (http://www.drmcdougall.com/stars/star13_cheryl_lambert.html)

[NotGolfer]

If you read Wheat Belly...much of what is in the Poster's article is the same. Interesting stuff!!!!!! Too long to get into here....so just directing you all to get a hold of this book and read it!

[rubicon]

You guys are dead wrong. I had it in court documents filed by plaintiff attorneys that the only cause for fibromylagia ws the car acident slip and fall or golf ball that hit their client period period

[jblum315]

Interesting. Seems to eliminate just about every food that people would normally eat. I guess that would fix the fibromyalgia all right

[Parker]

Interesting. Seems to eliminate just about every food that people would normally eat. I guess that would fix the fibromyalgia all right :1rotfl:

[Golfingnut]

fibromyalgia =

Term used by doctors that cannot find any cause for patient complaint.

[jimbo2012]

Interesting. Seems to eliminate just about every food that people would normally eat. I guess that would fix the fibromyalgia all right


Look at this way does one live to eat OR eat to live!

[Cantwaittoarrive]

fibromyalgia =

Term used by doctors that cannot find any cause for patient complaint.

:bowdown::bowdown::bowdown:

[gamby]

fibromyalgia didn't exist until the drug Co's came up with a drug to treat it;
Doctors would tell their patients it was something else and there was no such thing as fibromyalgia .

There is a possible connection to Lyme disease but Lyme disease and
co/ infections have been disputed for 30 years now . Yet some research
claims 200,000 people a year are infected with lyme.

Modern Medicine ???:

[TrudyM]

fibromyalgia didn't exist until the drug Co's came up with a drug to treat it;
Doctors would tell their patients it was something else and there was no such thing as fibromyalgia .

There is a possible connection to Lyme disease but Lyme disease and
co/ infections have been disputed for 30 years now . Yet some research
claims 200,000 people a year are infected with lyme.

Modern Medicine ???:

Not invented finally recognized. Fibromyalgia was ignored and said to be all in your head until recent times. They said it was what women got when they were depressed or lazy. They have found an inflammation of the nerve endings that they have no certain cause for. They only thing they are sure of is that it is somehow connected to Serotonin uptake which is a monoamine neurotransmitter. That is why the medications that they give for it are very similar and sometimes the same as those that are for clinical depression.
To say an illness that you don't have was invented is mean spirited. I am in pain every day and it is not funny at all. The day my mother tried to kill herself because she was tired of living with the pain wasn't funny either. All you who think is a laugh make me sick. I just hope you come down with something and think how funny you think it is.

[senior citizen]

Rheumatology experts like Alex Shikhman, MD, believe the diversity of dietary approaches may have less to do with the impact on fibromyalgia, and more to do with treating a secondary, possibly undiagnosed illness. "When patients are helped by a specific dietary measure," says Shikhman, who is director and founder of the Institute for Specialized Medicine in San Diego, "it is often because of the presence of a secondary condition that does have a recognized response to diet. And when you take care of that, you do get some relief from all the symptoms. You feel better overall."

There are a number of co-existing health conditions that have a tendency to occur in people with fibromyalgia. Many of these have overlapping symptoms. These include gluten intolerance, gout (a form of arthritis), and restless legs syndrome. Some doctors believe food sensitivity itself could sometimes be responsible for some of the pain and fatigue of fibromyalgia.

Moreover, Holtorf points out that because each of these secondary conditions responds to a different dietary approach, it's not hard to understand why "different dietary recommendations are reported to work."

Shikhman believes that sometimes fibromyalgia may even be the wrong diagnosis. That's another reason, he says, we can sometimes see such dramatic and immediate response to so many different dietary measures.

"Sometimes, if you carefully note which foods a patient responds to," Shikhman says, "you can actually get a significant clue as to the true nature of their underlying health problems. And it might not always be fibromyalgia."
Fibromyalgia: Seven foods to avoid

While there may not be a single set of dietary guidelines that are right for all fibromyalgia patients, there are certain foods, or food groups, that appear to make a difference for a significant number of people. But remember,
avoiding these foods is not a guarantee that your symptoms will change. Also, avoiding one group may offer benefit while another may make no difference at all. Nevertheless, the experts WebMD talked to agree that eliminating at least some of these foods is worth a try.

1. Aspartame (NutraSweet). All the experts WebMD talked to agree that for a large majority of people with fibromyalgia, foods sweetened with aspartame could exacerbate fibromyalgia symptoms.

"There is a pain receptor in the nervous system known as NMDA," says McNett. "When pain turns from acute to chronic, it involves opening the NMDA pain receptor. Aspartame, which is classified as an excitotoxin, helps to stimulate this event." He also says people with fibromyalgia appear to already have overly active NMDA pain receptors, making them more susceptible to the stimulation.
2. Food additives including MSG (monosodium glutamate) and nitrates. MSG is an additive or flavor enhancer that's found in many processed and frozen foods and in some Asian cuisines. Experts say it can intensify pain symptoms in many individuals. Like aspartame, MSG is classified as an excitotoxin and has the same potential for affecting NMDA receptors.

The same is true, says McNett, for foods containing preservatives such as nitrates, commonly found in lunchmeats like ham or bologna or in bacon.

"A lot of people who don't have fibromyalgia can't tolerate nitrates or MSG very well. But one of the hallmarks of this condition is that it amplifies unpleasant reactions," McNett says. "So a stimulus that some people would find mildly unpleasant becomes very unpleasant in those who have fibromyalgia." Cutting these ingredients out of the diet, he adds, usually helps.
3. Sugar, fructose, and simple carbohydrates. There is no clear evidence that cutting out simple carbohydrates -- like sugar, cake, or white bread -- will have an impact on fibromyalgia. What it can do, though, is reduce symptoms of chronic yeast infection -- a fungus that thrives on sugars and may be a secondary condition contributing to the pain of fibromyalgia. This theory, however, is still being debated by experts.

"Cutting out sugary foods, particularly high fructose corn syrup, can make a difference in these patients," says Holtorf. "And that's independent of any weight loss that might occur when they stop eating these foods."

Shikhman adds that cutting out carbonated beverages sweetened with fructose may yield even more noticeable results. That's because the carbonation, he says, causes a metabolic reaction. This reaction results in much more sugar pouring into the blood much more quickly.

"It's this quick rise in blood sugar," Shikhman says, "followed by the subsequent fall that exacerbates the fatigue element of fibromyalgia. That, in turn, creates more cravings for sugar, followed by still more fatigue -- allowing a vicious cycle to develop." Cutting out the sugar, he says, particularly soda, can result in better, more even control of blood sugar. Better control will help reduce fatigue and at least some of the related pain.

4. Caffeine -- including coffee, tea, colas, and chocolate. Because it is considered a stimulant, many fibromyalgia patients turn to caffeine-rich beverages as a source of energy. But McNett says the boost you get is false -- and can quickly exacerbate fatigue.

"The problem with caffeine is that the 'up' is relatively brief and transient," he says. "And it's followed by substantially longer and deeper sedative effect."

Because people with fibromyalgia are already tired, McNett cautions, those sedative effects can be much more powerful. "They are starting off from a point of fatigue, so the sedative qualities are amplified -- leading to a much deeper and long lasting sense of fatigue."

The good news is that cutting out caffeine can make a difference within less than a week. "Most patients begin to see a difference in their fatigue level almost right away," he says.

5. Yeast and gluten. Although these are two separate food substances, they frequently appear together -- particularly in baked goods like cake, donuts, and bread. For this reason, cutting out one, usually means you are cutting out both. That can actually yield two separate benefits for people with fibromyalgia.

In the case of yeast, some doctors say it fosters the overgrowth of the yeast fungus in the body. This overgrowth may cause or exacerbate much of the joint and muscle pain experienced by people with fibromyalgia. Research, though, has yet to confirm this link.

Gluten can exacerbate a condition known as gluten intolerance. Gluten intolerance, Shikhman says, frequently results in a variety of stomach ailments and other digestive problems. It also is associated with fatigue in patients with fibromyalgia.

"I have seen people with and without fibromyalgia experience enormous positive changes in their health by simply cutting out gluten products," Shikhman says.

6. Dairy. Be they low fat or high fat, some experts say, dairy products -- particularly, milk -- have been known to drive the symptoms of fibromyalgia. Avoiding these products may help some people turn their health around.

On the other hand, if you feel as if milk is doing your body some good, keep chugging a glass or two of skim milk a day. It's got calcium to build bones and protein to build muscle, and it's fat free.

7. Nightshade Plants: Tomatoes, chili and bell peppers, potatoes, and eggplant. There are over 2,000 species of plants that that can be listed under the category of "nightshade." Those which are edible comprise a group that some say can trigger flares of various types of arthritis, including fibromyalgia.

"I have seen patients who do much better when they cut these foods out of their diet," says Holtorf. We're not sure why, but it seems to work in a significant percentage of fibromyalgia patients." At the same time, these vegetables are among the most nutritious. So if they don't trigger your fibro pain, don't ban them from your fridge.

Avoiding certain foods may help individual patients better cope with their disease. Nutritionist Samantha Heller, MS, RD, says, however, that most can also benefit from an overall heart-healthy approach to good eating.

"When you are eating a heart-healthy diet - one low in saturated fat, lean meats, and poultry and high in the fresh fruits and vegetables that don't cause you problems, your body is going to work in a more healthful way, " Heller says.

And while, she says, this won't necessarily reduce your fibromyalgia symptoms, it can help to reduce the risk of other ailments that can only compound your health issues.

"When your body is healthier overall," says Heller, "you may be better able to cope with any disease, and better able to respond to even small changes you make."

One small study published in the journal Complementary and Alternative Medicine in 2001 found that patients who ate a vegetarian diet consisting of mostly raw whole foods did see a reduction in their fibromyalgia symptoms.

Holtorf also believes that sticking to a heart-healthy diet may yield some specific helpful effects. "Patients with fibromyalgia have documented mitochondria dysfunction," he says. "This is the area of the cell where energy is made. Consequently, it's necessary to have high levels of nutrients to get the mitochondria to work and for energy to be produced." So, Holtorf adds, the higher your level of dietary nutrients, at least theoretically, the better off you might be.

What can also help, he says, is a high potency vitamin supplement as well as supplements containing omega 3 fatty acids. Omega 3 fatty acids -- which are also found in foods such as fish oil, flax seed, walnuts, some fortified cereals, and eggs -- are the "good fats" that have been shown to have an impact on inflammation.

"For some fibromyalgia patients," Holtorf says, "they work extremely well." Then he adds, "It is definitely worth a try."

This is an excellent well thought out outline by poster...........

Anyone who has tried an "elimination diet" will see that what he mentions is true.......however, when a person goes back to the "chain restaurants" who do use a lot of "flavor enhansors" or "excitotoxins", etc. the pain and inflammation will return.......ditto for those "heavy on the frozen or prepared foods" in the supermarkets.
Stauffers is a huge culprit.
Check out their website.

Fibromyalgia is a REAL pain.......no pun intended.

I know many folks who suffer with fibromyalgia as well as arthritis.....

Eliminating even some of the things mentioned will be helpful, especially for those with gluten intolerance.

Our food today is NOT the food we were raised on.
Our moms cooked from scratch with real whole foods.

Our bodies cannot tolerate the additives and preservatives in today's food supply:

Aspartame

Food Additives like MSG (Excitotoxins), flavor enhansors.....

Nitrates

HIGH FRUCTOSE CORN SYRUP (in just about all processed and canned foods).......watch the movie "King Corn"....

YEAST and GLUTEN

Nightshade family of plants is difficult for those sensitive to them..........but definitely aggravates pain and inflammation in the body.

Once again, EXCELLENT POST..........

[gamby]

Trudy



My post was misunderstood ,

Fibromyalgia, IS a real disease, it was not recognized by doctors at that time; It's still not known what causes it. There are several doctors/researchers that found Spirochetes (Lyme complex disease) in many of these patients. When treatment for this was tried some got well. It's still controversial .

The illness was not invented , The name "fibromyalgia" was.
It's a syndrome, meaning a group of symptoms so it is not a disease but a condition.
I never said it was funny , I don't know where you got that from.




I have chronic lyme disease and co/infections since 2003; Many ER trips, Black outs, in a coma for months followed be a year in the Hospital, 2 years of rehab just to learn how to walk again and Lost my sight for weeks. I finally got out of my wheelchair and can function somewhat again with a walker. I do still have many of the symptoms but not as bad since years of treatment.

[senior citizen]

fibromyalgia didn't exist until the drug Co's came up with a drug to treat it;
Doctors would tell their patients it was something else and there was no such thing as fibromyalgia .

There is a possible connection to Lyme disease but Lyme disease and
co/ infections have been disputed for 30 years now . Yet some research
claims 200,000 people a year are infected with lyme.

Modern Medicine ???:

I have some friends and relatives with severe fibromyalgia; they've tried every treatment going over the years, in addition to elimination diets, etc.
Full body massage seems to help a bit but nothing truly relieves the pain.

Years ago (in the olden days) it was called "muscular rheumatism".

Since William Gowers first described the condition in 1904, it has been called fibrositis, fibromyositis, myofibrositis, muscular rheumatism, tension myalgia, myalgia, rheumatic myositis, and myelogelosis.


The list is only partial: * Muscular Rheumatism * Interstitial Myofibrositis * Myofascial Pain Syndrome * Myofascitis * Trigger Points (Trigger areas, Trigger zones) * Myofascial Pain - Dysfunction Syndrome * Fibrositis
An important step was taken, say Travell and Simons, when formal definitions were developed....

fi·bro·si·tis (fhttp://img.tfd.com/hm/GIF/imacr.gifhttp://img.tfd.com/hm/GIF/lprime.gifbrhttp://img.tfd.com/hm/GIF/schwa.gif-shttp://img.tfd.com/hm/GIF/imacr.gifhttp://img.tfd.com/hm/GIF/prime.gifthttp://img.tfd.com/hm/GIF/ibreve.gifs)
n.1. Inflammatory hyperplasia of white fibrous connective tissue, especially surrounding the muscles and causing pain and stiffness.
2. See fibromyalgia (http://www.thefreedictionary.com/fibromyalgia).

LYME DISEASE IS A VERY VERY SERIOUS CONDITION.......anyone who lives or vacations where deer ticks are, must be very cautious.
Many believe the connection to fibromyalgia to be REAL.

[jimbo2012]

I think U mean "ticks" not mosquito's

[senior citizen]

I think U mean "ticks" not mosquito's

Thank you. Yes, you are right......I meant to say ticks.
It was very early in the a.m.

Mosquitos are the culprit for West Nile Virus, also prevalent by the seacoast of Maine, New Hampshire, Massachusetts..........etc.

Deer ticks for Lyme Disease.....

[gamby]

Here are a few posts from a lyme forum




--------------------------------------------------------------------------------
Yes, my first "diagnosis" was fibro, and I went 25 years looking for what it was.

Then I found out I actually got Lyme disease, from a known tick bite. I can date every symptom, which makes it very clear for me - 18 months later, I had full-blown fibro.

When I found out it was Lyme, I tried to contact as many folks as I could from my fibro days, and by then, in the mid 2000s, they had found out it was Lyme, and some had co-infections.

Also, if you watch the Lyme film, "Under Our Skin," which you can do for free at Watch TV. Watch Movies. | Online | Free | Hulu (http://www.hulu.com), you will see many Lyme patients saying they were first diagnosed with fibro.


--------------------------------------------------------------------------------
#3

Yes, I had fibromyalgia and when I was done with Lyme treatment it was gone, too. Lyme definitely caused the fibro.


--------------------------------------------------------------------------------
#4

Posts: 12229 | From Ohio

Initially, I was diagnosed with FM and CFIDS. The fibro pain has improved greatly since being on the correct treatment
-------------------------------------------------------
post

From EAPennsylvania


Fibro usually IS Lyme.
--------------------------------------------------------------------------------
#6

Posts: 1236 | From NJ |

I think lyme and fibro is the same thing.


--------------------------------------------------------------------------------

post

An LLND came and spoke at a support group meeting. She stated that 95% of all people diagnosed with Fibromyalgia test positive for Lyme (IGeneX criteria). And where there is a positive Lyme test, there is likely also coinfection issues.

[senior citizen]

Here are a few posts from a lyme forum




--------------------------------------------------------------------------------
Yes, my first "diagnosis" was fibro, and I went 25 years looking for what it was.

Then I found out I actually got Lyme disease, from a known tick bite. I can date every symptom, which makes it very clear for me - 18 months later, I had full-blown fibro.

When I found out it was Lyme, I tried to contact as many folks as I could from my fibro days, and by then, in the mid 2000s, they had found out it was Lyme, and some had co-infections.

Also, if you watch the Lyme film, "Under Our Skin," which you can do for free at Watch TV. Watch Movies. | Online | Free | Hulu (http://www.hulu.com), you will see many Lyme patients saying they were first diagnosed with fibro.


--------------------------------------------------------------------------------
#3

Yes, I had fibromyalgia and when I was done with Lyme treatment it was gone, too. Lyme definitely caused the fibro.


--------------------------------------------------------------------------------
#4

Posts: 12229 | From Ohio

Initially, I was diagnosed with FM and CFIDS. The fibro pain has improved greatly since being on the correct treatment
-------------------------------------------------------
post

From EAPennsylvania


Fibro usually IS Lyme.
--------------------------------------------------------------------------------
#6

Posts: 1236 | From NJ |

I think lyme and fibro is the same thing.


--------------------------------------------------------------------------------

post

An LLND came and spoke at a support group meeting. She stated that 95% of all people diagnosed with Fibromyalgia test positive for Lyme (IGeneX criteria). And where there is a positive Lyme test, there is likely also coinfection issues.

What is the exact treatment for Lyme Disease........antibiotics?
Which brand name? Thanks in advance.

[gamby]

My first line treatment was DOXY followed by Rocephen.

Here is a good lyme forum, some are confused but most are informative.

LymeNet Flash: Medical Questions (http://flash.lymenet.org/scripts/ultimatebb.cgi/forum/1?)


Had wrong site sorry

[senior citizen]

My first line treatment was DOXY followed by Rocephen.

Here is a good lyme forum, some are confused but most are informative.

LymeNet Flash: Medical Questions (http://flash.lymenet.org/scripts/ultimatebb.cgi/forum/1?)


Had wrong site sorry

To your knowledge, where would someone pick up the babesis parasites?
Someone thought they had that rather than Lyme Disease.

[graciegirl]

Trudy



My post was misunderstood ,

Fibromyalgia, IS a real disease, it was not recognized by doctors at that time; It's still not known what causes it. There are several doctors/researchers that found Spirochetes (Lyme complex disease) in many of these patients. When treatment for this was tried some got well. It's still controversial .

The illness was not invented , The name "fibromyalgia" was.
It's a syndrome, meaning a group of symptoms so it is not a disease but a condition.
I never said it was funny , I don't know where you got that from.




I have chronic lyme disease and co/infections since 2003; Many ER trips, Black outs, in a coma for months followed be a year in the Hospital, 2 years of rehab just to learn how to walk again and Lost my sight for weeks. I finally got out of my wheelchair and can function somewhat again with a walker. I do still have many of the symptoms but not as bad since years of treatment.

Excellent post Gamby, and you have my sympathy and respect.

I am put off by simplistic explanations such as diet curing complex maladies.

Keeping our bodies healthy and sustaining ourselves with good food based on the nutritious rules we know is bound to help. But availing ourselves of the medicines and procedures and advice of the traditional medical community is not a bad thing.

Mankind has used the wealth of information that we have garnered over years to lengthen our lives and to live more comfortably but we haven't solved all the the problems of disease and pain.

We need to turn to the experts trained in treating diseases such as fibromyalgia, while we still can afford to do so.

[senior citizen]

Excellent post Gamby, and you have my sympathy and respect.

I am put off by simplistic explanations such as diet curing complex maladies.

Keeping our bodies healthy and sustaining ourselves with good food based on the nutritious rules we know is bound to help. But availing ourselves of the medicines and procedures and advice of the traditional medical community is not a bad thing.

Mankind has used the wealth of information that we have garnered over years to lengthen our lives and to live more comfortably but we haven't solved all the the problems of disease and pain.

We need to turn to the experts trained in treating diseases such as fibromyalgia, while we still can afford to do so.


Yes, in agreement, however, we know people alive now and have known others (now deceased) who were fit, active, vegetarians/vegans......who did everything right; didn't smoke and still got cancer. Most died from it at a younger age......30's, 40's, 50's, early 60's........

To a larger extent, it could be simply genetics or environmental such as where they lived (if they lived for a time in smokestack industry type regions, with pollution, etc)........

Again, the deceased "did everything right" and were health conscious to a fault..........I truly believe that what we will die from is not just about the food we consume......although that does contribute to a lot of modern man's maladies.

P.S. Let's not forget the brain tumors which are so prevalent nowadays.......we know a few of those folks too........supposedly "perhaps" caused by cell phone use.
Remember when it was thought to be microwave ovens? We still use them. What about computer screens? T.V. sets? Cops who use radar in their patrol cars?
How about all the radiation one gets during medical testing?????????

[gamby]

The same tick bite can transmit several diseases all at once,
Lyme, Babesia, Bartonellosis, Mycoplasma, and more.
This is why it is called Lyme/complex disease.

Here is a great site, Lotts of information.
WildCondor's World (http://wildcondor.com/)

[senior citizen]

.....

[senior citizen]

Gamby:

One of my best friends had this condition so I am aware of the fact that often people are sent on a medical merry go round from specialist to specialist, as she was.

Or......medicated with incorrect pharmaceuticals based on a faulty diagnosis.

Thankfully, she did find a physician who figured it out, much as she had tried to figure it out herself..........

Very, very interesting website.

[gamby]

Grave stone


I quit smoking, lost 20 lbs, exercised every day ate a very healthy diet,



And still died !



P.S. " We live to short and die to long "

[TrudyM]

Trudy



My post was misunderstood ,

Fibromyalgia, IS a real disease, it was not recognized by doctors at that time; It's still not known what causes it. There are several doctors/researchers that found Spirochetes (Lyme complex disease) in many of these patients. When treatment for this was tried some got well. It's still controversial .

The illness was not invented , The name "fibromyalgia" was.
It's a syndrome, meaning a group of symptoms so it is not a disease but a condition.
I never said it was funny , I don't know where you got that from.




I have chronic lyme disease and co/infections since 2003; Many ER trips, Black outs, in a coma for months followed be a year in the Hospital, 2 years of rehab just to learn how to walk again and Lost my sight for weeks. I finally got out of my wheelchair and can function somewhat again with a walker. I do still have many of the symptoms but not as bad since years of treatment.

I am sorry for your pain. I am glad you have gotten some improvement.

I just get frustrated when just because the doctors don't know what causes something people think it is made up. I thought that is what you were saying. It is called the practice of medicine I think because they still don't know what causes a lot of what people suffer from. When my mother had fibromyalgia at first her insurance wouldn't pay for her treatments as they said it was a mental illness. As you can tell it still makes me angry and now I have the same symptoms she had just not as severe. Thanks for the suggestion about getting tested for lyme. I don't know if I was tested for lyme disease I will check but they ran me through a full blood panel so I would assume so.

[Dreamer61]

I read an article that fibro patients were linked to vitamin D deficiency?!

[gamby]

There still is no accurate test for lyme disease;

There is one lab in CA. that has the most accurate testing available'
Here is their site,

Welcome to IGeneX, Inc. (http://www.igenex.com/Website/)

[ginamarie]

I am new to the area and I was wondering if there is a social group with this condition that meets please and thank you?

[Villages PL]

Avoiding certain foods may help individual patients better cope with their disease. Nutritionist Samantha Heller, MS, RD, says........

...... this won't necessarily reduce your fibromyalgia symptoms, it can help to reduce the risk of other ailments that can only compound your health issues.

[B]"When your body is healthier overall," says Heller, "you may be better able to cope with any disease, and better able to respond to even small changes you make."

[Holtorf] ....it's necessary to have high levels of nutrients to get the mitochondria to work and for energy to be produced." So, Holtorf adds, the higher your level of dietary nutrients, at least theoretically, the better off you might be.

The above quotes stand out and make a lot of sense to me. But I have found that a lot of people are dismissive of eating a healthy diet unless they see a direct connection between the diet and their disease. Some may even seek to prove the opposite, that good diets are bad and bad diets are good. :icon_wink: