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spk7951
05-11-2013, 08:32 AM
For what will be my 1,000th post I thought I would share a short story about something near and dear to my heart, that being my wonderful wife and her cancer fight along with a recent rather profound comment from one of her doctors.

Barb was diagnosed in 2005 at the age of 49 with Multiple Myeloma which is a rare cancer of the plasma cells in bone marrow. At that time the only treatment was a stem cell transplant. Later that year she had a successful transplant. Since the long term prognosis was bleak we quickly decided to figure out how to retire as soon as possible. In July 2008 we were able to retire and move from CT to The Villages. Doctors had told us the odds were against making 5yrs of being cancer free. So when she reached that 5yr mark, which corresponded with her 55th birthday, and she was still clean some 70 or so friends and family got together and threw a surprise party for her in TV. Unfortunately 6yrs and 3 months after the transplant we got the news we knew would come one day, the cancer was active again. But this time things were different as now the doctors talked about treatment options and another transplant was now a last resort. Her local oncologist along with a specialist in Gainesville and her transplant doctors at Yale decided to use Revlimid to fight the cancer. While the medicine has had some expected side effects that have caused some lifestyle changes, notably she had to give up volunteering for Happy Horse Rescue, it is working. So for the last 16 months the monthly tests have now been changed to quarterly tests because as the doctors have said "there is no progression of the cancer cells". The fight goes on and Barb goes on with her lifestyle here in TV which she enjoys probably more than anything and I have long said is a big reason for her health. Which brings me to the profound statement made this past week by one of her doctors at Yale. After looking at Barb's latest test results and having me show both doctors the three web cameras at our town squares, via iPad, one of them said "continue with this medication and continue with your Florida lifestyle, both are working for you". Indeed they are.


For those of you also in this "fight" we wish you the best and we pray for a cure for all cancers.

ajbrown
05-11-2013, 08:45 AM
What a great post for number 1000. Cancer is something that touches so many of us either directly or indirectly, it is heartwarming to read stories like yours. I wish you and your family all the best.

gomoho
05-11-2013, 08:45 AM
What a beautiful story - congratulations on your 1000th post - you certainly made it memorable. Also congratulations on Barb's battle against cancer which will allow her
to continue to "live the lifestyle". Best wishes to the both of you.

quirky3
05-11-2013, 09:19 AM
I'm so glad your life has been fulfilling, and your choices have brought you both health and happiness

gerryann
05-11-2013, 09:24 AM
Congratulations to you both!! Continue to live and love your life here in TV!!!

glgene
05-11-2013, 09:34 AM
What a heart-warming story! Maintain the optimism, smiles and sharing here with your TV friends.

Schaumburger
05-11-2013, 10:38 AM
What an uplifting post. Best wishes to both you and Barb, and I hope you are both able to enjoy many years in The Villages. :wave:

ilovetv
05-11-2013, 11:44 AM
This is absolutely wonderful news. I think people sometimes forget the power of an uplifted spirit when battling a disease like this.

Congratulations and keep your eye on the goal!

zcaveman
05-11-2013, 02:38 PM
Great news!! Thanks for sharing.

Z

graciegirl
05-11-2013, 02:44 PM
Thank you for telling us this. What a gift to hold close to our hearts.

My most sincere wishes for both of you for your continued good health and happiness.

Cantwaittoarrive
05-11-2013, 04:33 PM
Beautiful post.

asianthree
05-11-2013, 04:38 PM
its nice to have such a special time for your 1000 post

carm310
05-11-2013, 04:45 PM
Awesome and inspiring post!

blue72
05-11-2013, 11:35 PM
ENJOY, ENJOY, ENJOY!!!!!
Great post and my very best wishes to you both!!!!

chevy
05-14-2013, 07:08 PM
:For what will be my 1,000th post I thought I would share a short story about something near and dear to my heart, that being my wonderful wife and her cancer fight along with a recent rather profound comment from one of her doctors.

Barb was diagnosed in 2005 at the age of 49 with Multiple Myeloma which is a rare cancer of the plasma cells in bone marrow. At that time the only treatment was a stem cell transplant. Later that year she had a successful transplant. Since the long term prognosis was bleak we quickly decided to figure out how to retire as soon as possible. In July 2008 we were able to retire and move from CT to The Villages. Doctors had told us the odds were against making 5yrs of being cancer free. So when she reached that 5yr mark, which corresponded with her 55th birthday, and she was still clean some 70 or so friends and family got together and threw a surprise party for her in TV. Unfortunately 6yrs and 3 months after the transplant we got the news we knew would come one day, the cancer was active again. But this time things were different as now the doctors talked about treatment options and another transplant was now a last resort. Her local oncologist along with a specialist in Gainesville and her transplant doctors at Yale decided to use Revlimid to fight the cancer. While the medicine has had some expected side effects that have caused some lifestyle changes, notably she had to give up volunteering for Happy Horse Rescue, it is working. So for the last 16 months the monthly tests have now been changed to quarterly tests because as the doctors have said "there is no progression of the cancer cells". The fight goes on and Barb goes on with her lifestyle here in TV which she enjoys probably more than anything and I have long said is a big reason for her health. Which brings me to the profound statement made this past week by one of her doctors at Yale. After looking at Barb's latest test results and having me show both doctors the three web cameras at our town squares, via iPad, one of them said "continue with this medication and continue with your Florida lifestyle, both are working for you". Indeed they are.


For those of you also in this "fight" we wish you the best and we pray for a cure for all cancers.[/QUOTE]

I was just diagnosed with Multiple Myeloma in april of 2013 .I go to the Florida cancer center .I am on Revlimd .So far i am not sure hoe it is doing.I will find out in june.I feel good,But have lots of back stiffness

spk7951
05-15-2013, 10:53 AM
Chevy:
Treatment of Multiple Myeloma has seen some good progress since my wife was diagnosed in 2005. Revlimid is keeping her cancer numbers in check and the doctors tell us if the numbers start going up then there are other treatments available that have shown good responses in patients. If there is any good news with cancer in our case it is that the longer the cancer stays in check the better because of the progress being made in treatment. Best wishes.



To everyone who responded with kind words and well wishes, Thanks from Barb & myself.

2BNTV
05-15-2013, 03:07 PM
A inspirational post. Good thoughts for her continued wellness.

stuckinparadise
05-15-2013, 03:26 PM
Our thoughts and prayers are with you and your family. Thanks for the wonderful sorry.

Lbmb24101
05-15-2013, 03:44 PM
Wonderful post, fantastic news, very uplifting!
It is also great to see the doctors working as a team.
Thank you for sharing these great news!
May you both enjoy years and years of love and happiness togrther!

Polar Bear
05-15-2013, 03:55 PM
Uplifting post. Best of luck to you, your wife, and Chevy.