Hemochromatosis

[boblink]

Are there any folks who suffer from hemochromatosis in the Villages?
This complicated disease has to do with iron deposits in the body. I am looking for a dietician knowledgeable about this disease and a proper diet or a professional familiar with it.

[misky]

Are there any folks who suffer from hemochromatosis in the Villages?
This complicated disease has to do with iron deposits in the body. I am looking for a dietician knowledgeable about this disease and a proper diet or a professional familiar with it.

My son and ex wife have it. They have to periodically have blood taken. No big deal to them. Not sure if there is a diet to help with this.

[cab1948]

I was diagnosed over 18yrs ago. I don't know of any special diet. Just stay away from foods high in iron. Also watch things like multi vitamins, generally have iron, get the ones that specially say no iron. Alcohol in moderation is okay. You can find a wealth of information on the web. Just google it. I have my blood tested and blood taken at the Florida Cancer Center. Dr Hussein treats me at this location and he is great! Any other questions please feel free to PM me.

[Peachie]

Are there any folks who suffer from hemochromatosis in the Villages?
This complicated disease has to do with iron deposits in the body. I am looking for a dietician knowledgeable about this disease and a proper diet or a professional familiar with it.

Boblink, my brother-in-law was diagnosed with hemochromatosis about 3 years ago. His physician has suggested he lower his red meat and alcohol consumption and, of course his blood is tested on a regular basis. I did find this on the Mayo Clinic website:


Avoid iron supplements and multivitamins containing iron. These can increase your iron levels even more.
Avoid vitamin C supplements, especially with food. Vitamin C increases absorption of iron. Try to drink vitamin C-rich juices, such as orange juice, between meals.
Avoid alcohol. Alcohol increases the risk of liver damage. If you have liver disease and hereditary hemochromatosis, avoid alcohol completely.
Avoid eating raw shellfish. People with hereditary hemochromatosis are susceptible to infections, especially those caused by certain bacteria in raw shellfish.
Drink tea. Some evidence suggests that drinking tannin-rich tea may slow the storage of iron.

I hope this helps a little and good luck in your treatment.