Talk of The Villages Florida

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- Medical and Health Discussion (https://www.talkofthevillages.com/forums/medical-health-discussion-94/)

- - Cystitis help (https://www.talkofthevillages.com/forums/medical-health-discussion-94/cystitis-help-310339/)

Quote:

Originally Posted by Gigi3000 (Post 1821556)

All the gastrologist here are in the sa.e practice, according to my Aunt. We're in Dayton Ohio.

Does anyone go to the appointments with her? Maybe at this point in her life she needs a patient advocate, to make sure she is seeing the correct Dr. Insurance companies have them and they even search the Dr’s in your plans ie: specialists

Quote:

Originally Posted by Boomer (Post 1821445)

If by ‘cystitis’ you mean a simple UTI, your aunt’s primary care doc or even an urgent care should be able to treat it with a run of antibiotics.

If by ‘cystitis’ you are referring to interstitial cystitis that is more complicated to treat. My very limited understanding comes from knowing someone who had the diagnosis of interstitial cystitis. I think that would require a specialist.

I hope your aunt’s cystitis is one that can respond to simple treatment with the right antibiotic. Even though gastroenterologists specialize in the digestive tract, I cannot imagine why he could not treat a simple urinary tract infection or would not be recommending a urologist or urogynecologist if the condition is complex.

Another thought that just occurred to me is that as a dialysis patient, I assume your aunt must have a kidney specialist, a nephrologist, she could see.

I wish you the best as you work on finding the medical help your aunt needs.

- - - - - - -

While I am here this morning — posting at the crack of dawn — I am going to elaborate a little on UTIs because there is something about them that people might not know:

In an older patient, a UTI can cause symptoms that look like dementia. I have seen this happen with at least 3 people I have known.

One was my dad. My dad’s mind remained sharp for his whole life, but later in life, he got at least 2 urinary tract infections that caused him to appear to have dementia because he would go back in time to being on the farm, as a kid.

The first time it happened, it really scared me. I called his doc who put him in the hospital on IV antibiotics.

I remember asking his doctor, “Will we ever get that good brain back?” His doctor told me not to worry and sure enough, when the antibiotics kicked in, Dad was back. (I cried because I was so happy.) He and I talked about it and he even remembered the things he had said while the infection was raging through him.

I am throwing this info in here, just in case someone reading this needs to be aware that if they see sudden dementia-like symptoms in an older person, it could be an easily treated bladder infection. (I know Dad would not mind me telling that story because it could help someone else.)

Boomer

YES! OMG, you are so correct on the meds! it really affected someone very close to us, we thought he had lost his mind-and a friend had to tell us it was the meds that were making him act the way he did. THANK YOU for posting that info, because the dr's certainly never told us. (not villages doc's btw, was a specialist from up north)

There is a big difference between an UTI cystitis and interstitial cystitis I suggest you look up this site ://www.ichelp.org/support/ask-an-ic-question/
I have started with a lot of UTI that later developed into non bacterial interstitial cystitis. On that site is a place to click on to join the cystitis support group. I got alot more help there. I find the cystitis diet to be real helpful in controlling it. I would recommend a urologist or a urogynecologist. Make sure when you call around to check out doctors you ask specifically if they have dealt with interstitial cystitis and also UTI. I hope you find a good one because most of them lack bedside manners and don't care other than to prescribe antibiotic for a UTI. but if you have the non bacterial cystitis all the antibiotics will do more harm than good.

If it’s chronic UTI’s or the feeling of. Take her to a Urogynecology specialist. They specialize in WOMENS urology. I thought I had constant UTI’s. Turned out to be Interstitial Cystitis. There are meds abc treatments that could help her. Best of luck 🥰

As a dialysis nurse for 23 years, I caution you trying any new medications without consulting her nephrologist(kidney doctor).
Patients with renal failure can not tolerate many medications or over the counter drugs. They can do much more harm than good. I would go through her primary care physician first and have them clear it with the kidney doctor.
Just being on dialysis is difficult enough, along with her other issues.
I am so sorry for her situation but there has to be some solution for these symptoms.
Don’t give up hope!!!

Quote:

Originally Posted by Gigi3000 (Post 1821327)

My aunt has Cystitis and her gastroenterologist wont do anything about it. She is a dialysis patient, has mobility issues and AFIB. I cant figure out if he thinks her issues are too many and therefore wont take additional steps to help her or if there really isn't anything that can be done. She works really hard to stay out of a nursing home by staying as mobile as she can so I hate to see her suffer with this. Shes only 79. She has diarrhea a couple of times a day, sorry for TMI. Any suggestions?

She needs a urologist or her primary care should follow. Her gastro should figure out how to get the diarrhea under control.

I had chronic cystitis until I started using baking soda. Mix a tsp of baking soda in water twice a day. Burning stops within 30 minutes. Symptoms should stop within 36 hours. Good luck. Don’t exceed doses.

Quote:

Originally Posted by PugMom (Post 1822043)

She didn't say anything about meds being the problem. It was the UTI that was the problem. It happened to my Mom. She had a small stroke later on and then developed full-blown dementia. She's in assisted living now & when she gets suddenly worse, they check her urine and sure enough, she has a UTI. She just will not drink enough water, even before her dementia.

Quote:

Originally Posted by kaydee (Post 1821402)

Yes... find another gastroenterologist and I recommend one not in The Villages.. call dr Bheema Singu 352-840-1001. He located in Ocala. Excellent Dr.

Follow this excellent advice. Get her away from this "doctor" as quickly as you can. Only 79 ? If you can drive her (and I know it is a burden) do so, if you can get her to quality physician, she will have such a higher quality of life, the quality she deserves.

That is just not true. Dr.Tram and Dr. Matthews are not in the same practice.