Talk of The Villages Florida - Rentals, Entertainment & More
Talk of The Villages Florida - Rentals, Entertainment & More
#31
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You wonder why, of all people, I made an appointment in the first place. Well, it's just the strange way that it happened, I was caught off-guard. My first thought, as I read the ad in the newspaper, was that it would be an observational lifestyle study and I was excited about the possibility of being a part of it. I've been a participant in one study that has been going on for nearly 20 years now and I like being a part of it (NIH_AARP Diet and Health Study). When the call came I was surprised to hear that it would be an Alzheimer's study and would involve taking an experimental drug. The very first thing I said to the woman caller was: "I think I should just forget about it because I'm against taking drugs." And it was as if she didn't want to take no for an answer because she then suggested that I get tested first and then make up my mind after talking to the doctor. She reassured me that I would be under no obligation to participate in the study. So, at that time, I thought, okay, I'll get a free gene test for Alzheimer's. And that was the hook that drew me in. Only a short time later did I start thinking that it might be a bad idea to find out if I have such a gene. And I began to wonder if the doctor would use that test as a way to reel me in as a participant. (Sort of like the car dealer who offers 5 gold coins if you come in to take a test drive.) Only today did I learn that the results of the gene test would not be disclosed to the prospective participant or to the doctor. |
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#32
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I think, no matter what the OP ultimately decided, this topic made for an interesting, thought provoking discussion. Any hostility or snarky personal remarks were, IMHO, uncalled for. Namaste.
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#33
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You made a very wise decision
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Ultimately, you made a very wise decision. No harm in exploring. |
#34
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p.s. to earlier post.......
Not all cognitive issues are Alzheimers Disease..... We have a friend in her 50's who's life has been saved via high tech radioactive isotopes being injected into her liver, etc., etc. for treatment of endocrine cancer these past seven years...........however, the physicians admit that the treatment is now the cause of her "cognitive" downturn........similar to Alzheimers or dementia but not exactly that. She's been treated at a top teaching university, one of the very best in the nation......... Unfortunately, her reasoning abilities, her comprehension, etc. have greatly declined. She is still on borrowed time. So, if we don't get one thing.......we will surely get another. Here is the Alzheimers website: Alzheimer?s Foundation of America - Alzheimer?s Disease and Caregiving Support Alzheimers Foundation of America |
#35
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It is an individual choice on doing the study and has been discussed on previous posts. I'm interested in knowing if it is a study with the use of medication vs placebo is sanctioned by the Alzheimer's Association (alz.org) or a drug company. I'm rather surprised the Alzheimer's Association would advertise in a news paper when there are thousands of people that volunteer on their site to help with a cure. Not all require the use of medication. |
#36
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If you go to their website, "Compassresearch.com", they have a section for sponsors. They do research for sponsors, which I assume could be a drug company. |
#37
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Closed Thread |
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