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And no two Alzheimer's patients are alike as are no two Asperger's patients.
Autism Management- Concerts – A Is For Aoife Not Autism |
1. His name is Mark.
2. He is on the autism spectrum as high functioning. 3. He is caretaker for his mom. 4. He doesn't have a cart. He walks from one of the villa areas nearby. 5. His yelling lasts around 20 minutes in total, out of the 4-hour performance. 6. Usually it's a beat count "One Two Three Four!" and then he dances around for awhile before his next one. Sometimes he gets so into the music he shouts again inbetween his counts. 7. He gives amazing hugs and smells of patchouli. 8. He carries a backpack with him, filled mostly with water in a jug from which he hydrates often. This is good, because he sweats a LOT while dancing around the square like that. 9. Whenever I see him out and about during the day, I always stop to say hello and get one of his hugs. He - always thanks me for taking a moment to stop and communicate with him, and has mentioned that many people are afraid of him. This makes him very sad, because he is who he is. Just like people with tourettes' syndrome have ticks and twitches and sometimes blurt out inappropriate words, he has that reaction when he's really into music. He gets lost in the sounds, and it makes him feel alive and energized, and shouting is how he expresses it. 10. He also sometimes goes on "twirling" binges, where he'll actually twirl even while he's walking to the square from his mom's house. This is a self-soothing activity for some people with autism. What's amazing is he never gets dizzy doing it and can maintain a twirl for many minutes without stopping. 11. If you don't like noise, don't go to the square and be sure to pad your home with plenty of soundproofing. |
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[QUOTE=Bill14564;2211021]Is he disruptive or does he dance around and occasionally make some noise? When I saw him last fall he danced his dance and didn't disrupt anything. Others have accused him of seeking attention but at that time he didn't acknowledge any attention at all, he just kept dancing. I don't recall any of those threads stating anything different.
I find it distracting and it affects my enjoyment to see people dancing poorly - should all the non-professional dancers be asked to leave because they deprive me of my enjoyment? I find my enjoyment of the entertainment considerably lessened by seeing unattractive old people on the dance floor - should it be a requirement that you have to be young and fit to dance at the squares because otherwise someone is deprived of their enjoyment? People talking behind me or walking in front of me while fetching their drinks detracts from my enjoyment - can anyone practicing those behaviors be kicked out? I don't know where the line is that separates uncommon behavior and disruptive behavior or if legally there is one. I haven't seen this individual in several months so perhaps his behavior has changed but to me it did not seem disruptive last fall. Of course, without a legal definition, "disruptive" becomes very subjective and as a society we've become very intolerant of those who are not like us. Are we to "hide away" individuals with disabilities that make US feel uncomfortable (Asperger's, Tourette's, mandibulofacial dysostosis, cerebral palsy, paraplegia, and many other conditions seem to make those fortunate enough to have no such affliction, very uncomfortable. But why people go further into intolerance, and even cruelty in some cases is perplexing. Perhaps (?) considered children of a lesser god ? Anyone remember that movie ? Or Cher in The Mask ? Showing the pain a mother endures just trying to give her son with mandibulofacial dysostosis a normal life. |
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So who exactly are you following to their cart, and no screaming and the person is perfectly normal, turn on and off behavior. Are You following the wrong person leaving the square. That’s a little scary, the need embellish your post to influence others, or keeping tabs on the wrong person |
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I have not found that true at all. |
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But, back to my question. Mark has a "condition" that he can't control. He acts out in certain ways that bring him unwanted attention. He is (we assume) aware that the stimuli of the sights and sounds at the music venues trigger his actions that elicit the looks and comments that make him unhappy. Knowing all this, one wonders why he continues to choose to expose himself to stimuli that will trigger his episodes and, ultimately, make him unhappy? Is it like a drug that gives you a temporary high that you know is ultimately let you down? I know that after my third trip to emergency one hockey season, the doctor suggested I might want to quit hockey and take up a less painful game, like checkers. When I said, "or chess",she remarked that after three trips to emergency it was obvious I wasn't smart enough for chess. So, why the need to go to a place where he doesn't want the looks or comments? |
I’ve never seen the man drive a cart, and he should be looked at with compassion, not contempt. It’s not all about you.
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