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KathieI
02-03-2009, 08:45 PM
Prayers are needed for my good friend in Los Angeles who has found out that her 3 year old son has a rare disease called United Mitochondrial Disease (UMDF).Things are not looking good for this little boy and it has broken my heart for the past 3 to 4 days and I can think of nothing more than how broken hearted my girlfriend is. Please pray for Kyle, he is an adorable child and may never see another birthday. Does anyone know of this disease? I've never heard of it. Thanks for your prayers.

barb1191
02-03-2009, 08:55 PM
Prayers are needed for my good friend in Los Angeles who has found out that her 3 year old son has a rare disease called United Mitochondrial Disease (UMDF).Things are not looking good for this little boy and it has broken my heart for the past 3 to 4 days and I can think of nothing more than how broken hearted my girlfriend is. Please pray for Kyle, he is an adorable child and may never see another birthday. Does anyone know of this disease? I've never heard of it. Thanks for your prayers.


Oh Kath.....I know the feeling of losing a youngster as I lost a five-year old handsome boy to pneumonia. My heart goes out to your friend and will send all the love and wishes and hopes for a miracle for the little tyke. Here's what I found online about UMDF .....Love, Barb
http://www.umdf.org/site/c.dnJEKLNqFoG/b.3042169/k.7A8C/About_Mitochondrial_Disease.htm

SUNNYMARYANN
02-03-2009, 09:12 PM
I will include your friend and her little boy in my prayers. This is a devastating disease and they will need all the support that family can possibly get from everyone.

Mikitv
02-03-2009, 09:13 PM
How sad Kath! I will add him to my prayer list.

Helene2008
02-03-2009, 09:23 PM
Kathie....Kyle and his family will be in my prayers.

Pookirgirl
02-03-2009, 10:19 PM
I cannot imagine the fear they are having. Prayers to them all!

angel222
02-03-2009, 10:24 PM
Kyle will be in my prayers too Kathie as well as his parents....they will all need much love and support...
Charlene

Whalen
02-03-2009, 11:22 PM
I'll be at St. Francis this week and liight a candle.
Too sad.

Peggy D
02-03-2009, 11:47 PM
Kathie,

I read what Barb posted about this disease. How awful. This baby and your friend are in
my prayers.

Donna
02-04-2009, 06:29 AM
Kathi...Please know Kyle and his family are in our prayers! An extra prayer for you is on it's way...

chelsea24
02-04-2009, 09:00 AM
Sending many prayers and loving thoughts to Kyle and his family.

http://i92.photobucket.com/albums/l23/dazzlejunction/greetings/christian-comments/believe.gif (http://www.dazzlejunction.com/)

chachacha
02-04-2009, 10:15 AM
kathie, you are so sweet to ask for prayers here...what a great idea...i will add kyle to my daily rosary. you once told me of a novena you made that worked a miracle for a friend....time to do it again...love you...

KathieI
02-04-2009, 10:23 AM
Thanks Chachacha and all of you praying for Kyle. I received this message from him Mom yesterday:

Thanks Kathie!
Keep the prayers coming. Kyle is fighting hard and we know he will be much better soon!
Best,
Jenn

You're right Cha, that Novena did work, now I just have to find it here in TV. Not many churches have it. My heart is so sad these days. Love ya too...

chachacha
02-04-2009, 10:37 AM
one can always turn to the novena to st. jude (a prayer repeated for nine consecutive days asking for st. jude to pray for our petition). for those who think this is hogwash...please bear with me:
OH HOLY ST JUDE, APOSTLE AND MARTYR, GREAT IN VIRTUE, RICH IN MIRACLE, NEAR KINSMAN TO JESUS CHRIST, FAITHFUL INTERCESSOR OF ALL WHO INVOKE YOUR SPECIAL PATRONAGE IN TIME OF NEED. TO YOU I HAVE RECOURSE FROM THE DEPTH OF MY HEART AND HUMBLY BEG TO WHOM GOD HAS GIVEN SUCH GREAT POWER TO COME TO MY ASSISTANCE. HELP ME IN MY PRESENT AND URGENT PETITION (NAME YOUR PETITION) IN RETURN I PROMISE TO MAKE YOUR NAME KNOWN AND CAUSE YOU TO BE INVOKED.
SAY 3 OUR FATHERS, 3 HAIL MARYS AND 3 GLORY BEs FOR NINE CONSECUTIVE DAYS. PUBLICATION MUST BE PROMISED. ST JUDE PRAY FOR US ALL WHO INVOKE YOUR AID. AMEN...THIS NOVENA HAS NEVER BEEN KNOW TO FAIL...

st.jude is known as the saint of the impossible...i will do this for kyle and i hope others who read it will join me. prayer is powerful...thanks for reminding me.

KathieI
02-05-2009, 12:44 AM
Just thought I'd share with you a message from Kyle's Mom that I received last night. I sent her a link of this thread so she could feel the love from TOTV'ers. This was her response:

Hi Kathie!
This is absolutely an amazing prayer chain. I read each of the responses. Thank you so much for asking your friends to prayer for our little man. Paul and I said the prayer to St. Jude this evening and will continue to do so. Our good friend Scott-Vincent Borba and his family have also been praying novenas. I believe God is hearing our pleas and is merciful -- Kyle is doing a bit better each day. I am hoping he might be able to come home from the hospital in about a month.

Best,
Jenn

PS - His illness is actually called 'Leigh Syndrome'. It is a type of Mitochondrial Disease. The United Mitochondrial Disease Foundation (UMDF) actually helps to research for cures and help families :-)

Jennifer is a wonderful woman, very beautiful inside and out. I'm really hearbroken for this family, please continue to pray for them. My dear friends on TOTV, you are the best!!! Kath

Brooklyn Rose
02-05-2009, 06:11 PM
Dear Kathi, I will remember little Kyle in my prayers. I have never heard of this disease, and pray that his family will find peace and strength. Love from Brooklyn Rose

Barefoot
02-05-2009, 06:15 PM
Prayers are needed for my good friend in Los Angeles who has found out that her 3 year old son has a rare disease called United Mitochondrial Disease (UMDF).Things are not looking good for this little boy and it has broken my heart for the past 3 to 4 days and I can think of nothing more than how broken hearted my girlfriend is. Please pray for Kyle, he is an adorable child and may never see another birthday. Does anyone know of this disease? I've never heard of it. Thanks for your prayers.


We pray for radiant good health for Kyle. And strength and courage for his parents.

graciegirl
02-05-2009, 07:58 PM
I will hold his needs in my heart and wish and hope for the best doctors and the best care and a major breakthrough soon. My heart aches for all of them.

ouma1938
02-05-2009, 08:34 PM
I will keep little Kyle and his family in my prayers today and everyday. Please let us know when our prayers are answered and the sweet little guy is better.

KathieI
02-05-2009, 11:33 PM
Thanks all, I will keep you informed as I hear from his mom. Thank you for your support.

BTW, welcome Bklyn Rose,,,, Hi Rosie, welcome to totv... thanks for posting.

KathieI
02-10-2009, 11:52 PM
Update on Kyle:
Kyle's mother wrote today on her Facebook page,
"that she never thought it could be so incredible to see Kyle eat apple sauce again"
Friends, our prayers are working, please keep them up. This little child is improving daily. Thank you from me and Jennifer. We really appreciate all the encouragement and good thoughts. Kathie

KathieI
02-24-2009, 09:05 AM
A miracle has happened. Kyle is coming home today from the hospital. I received this message today from his Mom's friend, I'm so happy I am crying. Thank you all for all your prayers, Dianne (chachacha), the St. Jude novena really worked. Thank you all, you are the best!!

WEDNESDAY, FEBRUARY 25: 12:30-1:30PM
"KYLE NORMAN'S HOMECOMING RALLY"

Children's Hospital Los Angeles
4650 W Sunset Blvd
Los Angeles, CA 90027
* the corner of sunset and vermont. south side of the street - 1/2 a block east of vermont, parking is underground.*


My return message:

Today at 8:26am

Thank you Connie. God bless them, I am so happy. If I wasn't in Florida I'd be there to celebrate but I'm there in spirit. I will pass this on to the prayer chain in my community. Please, give them all kisses from ME!
I (and my friends) pray for them daily. Keep me posted.

C:\Users\kingeni\Pictures\Kyle's pict.jpg

baileysdad
02-24-2009, 01:03 PM
Kathie...I've sent this boys struggle up to my church in Michigan to include him and his family in our daily prayers.

Bailey's Dad

nONIE
02-24-2009, 01:30 PM
This is such wonderful news Kathie!Thanks for letting us know. Prayers are answered and miracles do happen!

chelsea24
02-24-2009, 01:58 PM
I'm so happy to hear this. It's wonderful news. I have an absolute belief in miracles and prayer! Wooooo hoooo! Yeah for Kyle! :a040::a040::a040: