[TwinTurboViper]

Trying to find support group or people that could help share the treatments and or symptoms of going thru this dreaded disease.

I have been diagnosed with this last year and only getting worse and trying to reach out to others that are experiencing this so that I can have better understanding of how to treat different conditions, best doctors to see and someone to talk to.

Thank you and apologize if I might have gotten the wrong place to post this and again appreciate any and all information as you all have helped so much in the past.

[Sage327]

Originally Posted by TwinTurboViper

Trying to find support group or people that could help share the treatments and or symptoms of going thru this dreaded disease.

I have been diagnosed with this last year and only getting worse and trying to reach out to others that are experiencing this so that I can have better understanding of how to treat different conditions, best doctors to see and someone to talk to.

Thank you and apologize if I might have gotten the wrong place to post this and again appreciate any and all information as you all have helped so much in the past.

If you need a Dr, I highly recommend Dr Catherine Sullivan, a Rheumatologist located here in TV.

[GrumpyOldMan]

Obviously, you need to speak with experts in the field.

In addition, I would recommend researching THC and CBD treatments and discussing the potential with your primary doctors.

[TJ SoBos]

I was diagnosed with RA (severe) about 8 years ago, and the Rheumatologist tried the gamut of treatments....including self injections. After about a year of different meds we found one that works.....Humira....which I inject every other week. It has controlled my symptoms quite well, and I remain pain free, and without joints getting all misshapen.
Luckily my insurance covered this extremely expensive drug.
Feel free to ask any questions. I hope you find something that works.

[Michread]

Members of The Villages health and wellness club may be able to give you some suggestions or support.

[PugMom]

you poor thing, hope you can find some relief soon

[tophcfa]

Wishing you nothing but the best. My late mom had it for the last 35 years of her life and learned to manage it enough to live a very good life. At first there was nothing but some trial medications available, but over time some very effective medications were developed that helped her immensely. One of my best friends, who is a scratch golfer, got diagnosed about 6 months ago as well. He couldn’t hold a golf club or ride a bike his wrists and hands hurt so bad. After being on the proper meds for a couple of months he is back to his normal daily activities, albeit with some pain and discomfort. Hang in there and establish a relationship with a good medical specialist. Positive thoughts will be coming in your direction.

[TwinTurboViper]

Originally Posted by Sage327

If you need a Dr, I highly recommend Dr Catherine Sullivan, a Rheumatologist located here in TV.

After my 2nd Dr I am now trying Dr and undergoing blood test now and scheduled for 3 weeks out as I was prescribed Prednisone for pain and so far it has worked miracles. I know these steriods are a temp fix and hope to find the correct meds to keep this under control. She seems to be a very "caring" Dr unlike others and appreciate your advice as others too had recommended her.
As my late brother often told me.... " Getting old ain't for sissies ". Thank you again for the recommendation

[TwinTurboViper]

Originally Posted by Sage327

If you need a Dr, I highly recommend Dr Catherine Sullivan, a Rheumatologist located here in TV.

After my 2nd Dr I am now trying Dr and undergoing blood test now and scheduled for 3 weeks out as I was prescribed Prednisone for pain and so far it has worked miracles. I know these steriods are a temp fix and hope to find the correct meds to keep this under control. She seems to be a very "caring" Dr unlike others and appreciate your advice as others too had recommended her.
As my late brother often told me.... " Getting old ain't for sissies ". Thank you again for the recommendation

[TwinTurboViper]

Originally Posted by tophcfa

Wishing you nothing but the best. My late mom had it for the last 35 years of her life and learned to manage it enough to live a very good life. At first there was nothing but some trial medications available, but over time some very effective medications were developed that helped her immensely. One of my best friends, who is a scratch golfer, got diagnosed about 6 months ago as well. He couldn’t hold a golf club or ride a bike his wrists and hands hurt so bad. After being on the proper meds for a couple of months he is back to his normal daily activities, albeit with some pain and discomfort. Hang in there and establish a relationship with a good medical specialist. Positive thoughts will be coming in your direction.

Would love to know who your friend's Rheumatoid Doctors name is. So glad he has recovered

[tophcfa]

Originally Posted by TwinTurboViper

Would love to know who your friend's Rheumatoid Doctors name is. So glad he has recovered

Sorry, his doctors name wouldn't be of much help as my friend is up north. I will find out what medication has been working for him and send you a PM.

[DAVES]

Originally Posted by TwinTurboViper

After my 2nd Dr I am now trying Dr and undergoing blood test now and scheduled for 3 weeks out as I was prescribed Prednisone for pain and so far it has worked miracles. I know these steriods are a temp fix and hope to find the correct meds to keep this under control. She seems to be a very "caring" Dr unlike others and appreciate your advice as others too had recommended her.
As my late brother often told me.... " Getting old ain't for sissies ". Thank you again for the recommendation

Re: caring doctor
Doctors often seem cold. Imagine what it is like all your customers are sick.

In terms of support groups. My view, my personality, does it help you to associate with people where the topic is IF, YOU THINK YOU HAVE IT BAD I AM FAR WORSE THAN YOU.

Why me is a normal question. The answer is, it is me and if, you say i can't do it, it is a dare and I will do it.

[Jdulle]

Yes, I would definitely recommend Dr. Catherine Sullivan!

[TwinTurboViper]

I have researched and have taken your advice and now have my 3rd appt with Dr Sullivan who is trying to get me diagnosed correctly with blood test etc and try not to read too much into the nightmares it can be. I have tried to correct my diet, watch my sugar and caffeinated drinks and hopefully get the pain under control as it can be rough at times.

Would love to find others who share my problems to discuss their remedies and helpfulness instead of all the worst case sensations I read on the internet. Also with all the years of experience that Dr Sullivan has I am hoping to get this under control.

Thanks again to all the ones that have given suggestions as it’s greatly appreciated. God bless and stay well

[KathieI]

Originally Posted by TwinTurboViper

Trying to find support group or people that could help share the treatments and or symptoms of going thru this dreaded disease.

I have been diagnosed with this last year and only getting worse and trying to reach out to others that are experiencing this so that I can have better understanding of how to treat different conditions, best doctors to see and someone to talk to.

Thank you and apologize if I might have gotten the wrong place to post this and again appreciate any and all information as you all have helped so much in the past.

Sorry to hear about your diagnosis. I was diagnosed about 3 years ago with RA and Fibromyalgia and the pain was getting worse and worse. My wonderful doctor (internal med) has tried every remedy including therapy. The side effects of some of the drugs were totally intolerable. The good news! Since quality of life is so important at my age, we have developed a daily dose of 5mg Prednisone which keeps me going all day. I consider it my miracle drug. Side effects are minimal since its such a lose dose.
Good luck!!