[OBXNana]

I will pass your information to the Porphyria Specialist in Texas, the physician that diagnosed my mother for the Dementia, and also the out of state pathologist that has expertise in both Porphyria and Dementia. She was "shipped" out of state for medical research when the autopsy was completed. Possibly, none of the experts in the fields were able to copy and paste your information.

My ongoing discussion with this topic will now come to a close. We will agree to disagree.

[senior citizen]

Originally Posted by OBXNana

I will pass your information to the Porphyria Specialist in Texas, the physician that diagnosed my mother for the Dementia, and also the out of state pathologist that has expertise in both Porphyria and Dementia. She was "shipped" out of state for medical research when the autopsy was completed. Possibly, none of the experts in the fields were able to copy and paste your information.

My ongoing discussion with this topic will now come to a close. We will agree to disagree.

One of us is obviously misunderstanding something or other.

I never meant to insinuate your mom did not have dementia or porphyria.
You said it did not show up at autopsy.

Alzheimers does show up at autopsy.

I also listed all of the myriad of diseases that include dementia as one of the symptoms. Nuff said.

I'm sorry for the loss of your parent.

[zonerboy]

Some persons enjoy posting opinions on subjects about which they have little actual knowledge. Other persons enjoy reading such opinions, perhaps deriving some sense of reassurance if the posted opinions coincide with their own preconceived ideas. But when this fact is pointed out to them (as by BarryRX), then both types get all defensive.
I'm willing to grant that such posts are generally made with the best of intentions, with a sense of sharing, or just an attempt to be helpful. Then again such behavior in and of itself could be an early sign of dementia or of some other mental disorder.
When it comes to Alzheimer's, one size most definitely does not fit all. The pre mortem diagnosis of Alzheimer's disease is subjective, not objective. The symptoms are also subjective. Very few patients diagnosed with this dreadful disease have had a brain biopsy. There are no other confirmatory tests. Thus errors in diagnosis are commonplace, even by well trained professionals.

[OBXNana]

She was diagnosed with Dementia and her brain showed no signs of having the disease. She was also diagnosed with pancreatic cancer due to shading on an X-ray and her symptoms. Again, not found during an extensive autopsy. She was treated for both and had neither.

My mother passed away in 2010. The findings of her autopsy, her extensive journals, and a wonderful medical community that dealt with her diseases "with the knowledge they had at the time" will help not just my blood line, but hopefully many people. As she always said, it can't end with her and through her sacrifices, and our persistence it won't. The Internet is a wonderful source of information, but can only cover a small percentage of knowledge available.