[mrsyarbie]

University of South Florida in Tampa, (an hour or so away) is a wonderful resource for Huntington's Disease. They have a big support group for people who have it and their families. They also do testing for people with family members who have Huntington's who want to know if they will themselves develop it. It is a simple blood test. It is handled very discreetly and it is not terribly expensive if you go thru their labs. They also have research programs for pts. who are interested in learning about this inherited disease in their families as a confirmed person with it ,or potential family member who could develop it .It almost always develops in the young adult years 20-40s. It is really worth checking out ... The site is on line under USF Health .Look under research.

my niece is now only 325 dollars away from her goal of raising $3500. Thank you to all that have donated .If you haven't donated & can please help. Much appreciated.....Mark

Thank You Tippyclubb your donation is much appreciated. If you go to the site listed above you'll see your donation went in today.

[CFrance]

Bosoxfan has been a forum member for a loooooooong time. I hope we can come together as members of a group and help him and Patty out!

Originally Posted by CFrance

Bosoxfan has been a forum member for a loooooooong time. I hope we can come together as members of a group and help him and Patty out!

Thank you CF

My niece is now% 91 to her goal. Thank you all for your support

Thank You Maddie! My family really appreciates your kindness!

One week to go and we're only $275 short! If there's anyone here that can afford to help out my family woud be extremely grateful. Thank you!

To all those that helped ..Thank You from the bottom of my heart. The walk was today & she reached her goal. Now lets hope for the ultimate goal . Finding a cure for this terrible disease that has its grip on my family.


https://www.facebook.com/hashtag/teampatty

This was posted on Facebook by my niece. Just extending her thank you to all of my friends here that helped out. God Bless!!


Nikki Collette
3 hrs ·

Just want to send out one last THANK YOU to everyone who donated to Team Patty for this past weekend's HDSA Team Hope Walk. Thanks to all of you, I get to make a very special phone call to my mom this afternoon to let her know that we raised OVER 3500 DOLLARS in her name towards Huntington's Disease research - the second highest team total in LA!

None of this would have been possible without such an amazing group of friends and family, and as I think I've probably said a million times before, I feel like the luckiest girl in the world to have so many wonderful people in my life. So, on behalf of myself and my family, thank you all from the bottom of our hearts